I urge everyone to read the entirety of this post, though it is long. This is because I quote in length from a blog that may very well go dark any day now.
Some of you may have read at The Opposite End of China a China Daily article on 19 middle school students being thrown out of school for being hepatitis-B carriers. While the schools involved claimed the students were contagious and they were complying with health regulations, China Daily also reported:
Zhang Yuexin, a senior expert from the Xinjiang Liver Disease Centre, disagreed, telling the Nanfang Daily: “There is nothing wrong with their liver functions. Viruses are duplicating inside their bodies, but do not show they are in an acute period.”
“What the schools have done is not legal. Even if the students are Hepatitis-B virus carriers, they still have the right to a normal school life,” a local lawyer named Zhang Yuanxin told China Daily.
In addition, the Health Minister Mao Qun’an said “this is prejudice”. Attention was brought to the issue by a group called Xuelianhua, or “Snow Lotus”, HIV/AIDS Education Institute (新疆《雪莲花艾滋简讯》). Xuelianhua was started in early 2005 and quickly began organizing students at four Urumqi universities, including my old stomping grounds Xinjiang Finance Institute. They later were given funding by the Global Fund To Fight AIDS, Tuberculosis and Malaria (the same group that, among other things, has brought you Bono and Oprah in (RED) t-shirts) and named a national member of the council for NGOs fighting HIV/AIDS. Chang Kun also was interviewed about his outreach to young gays in Urumqi (Chinese article). On his blog, founder Chang Kun further lists (in an open English letter, with further information in Chinese and English):
Our organization has promoted four HIV/AIDS university student associations, organized red ribbon student activities and participation of minority students in cure and prevention. Snow Lotus also organized the 2005 second forum for students and HIV/AIDS, organized Xinjiang university peer education workshops, set up a spot
for free condom delivery, care and protection for children living with HIV/AIDS, organized the first university enrollment for students living with HIV/AIDS, organized Xinjiang debate on homosexuals self identity and HIV/AIDS education, scheduled public visits to beauty salons’ outpatient services, held public conferences on the use of medication for people suffering from contagious diseases, helped students suspended from school to make legal appeals, set up a channel to share and deliver information as well as the regular publication “Snow Lotus Aids News Brief” with more than one thousand members subscribed. In 2006, Snow Lotus applied and received funding from the NGO “Global Fund for HIV/AIDS tuberculosis and malaria”.
So what happened next? According to Reuters:
China has banned an unregistered non-governmental AIDS group founded by university students in the far western region of Xinjiang, an activist and a lawyer said on Thursday.
The “Snow Lotus” AIDS education group, which had over 200 mainly university student volunteers, was closed down on Wednesday by the local government for not having registered with them, activist Chang Kun told Reuters.
On his blog, Chang Kun details:
On 10 October 2006, the incident regarding those 19 students suspended from school was reported in the national media and the main representatives of the local departments of education were condemned. After this, Snow Lotus received increased pressure from the local authorities. Even more volunteers were taken away for interrogation and there was even one university student who was held at the police station until after midnight.
On 13 October, I was interrogated for seven hours and was warned that Snow Lotus should not carry out any work again. This included withdrawal from the Global Fund HIV/AIDS Project,. I was threatened with arrest if I failed to comply with this warning.
At ten o’clock in the morning of 18 October 2006, while I was doing training in the work unit, I was summoned to the security department of the university. I was interrogated by personnel from the Xinjiang NGO Legal Bureau and by police officers. After that, they came to my residence and to the Snow Lotus office together with directors from the university and carried out an investigation. At noon, the Xinjiang NGO Legal Bureau showed me the “Notice on the Legal Ban of Illegal NGOs”, a document which I had printed myself long ago, and declared the ban of Snow Lotus HIV/AIDS Education Institute. The alleged reason was that the organization was not registered as an NGO but was carrying out activities as such. At the same time, they also threatened me and said I should “immediately stop those illegal activities, otherwise the organization would be sanctioned according to regulations issued by the relevant legislation, the legal code of administrative sanctions and the relevant departments”.
After that, my residence was closed down and the materials, articles, hard drives and computer in Snow Lotus were confiscated. During this process, I argued with them, closed my personal email account but they didn’t show any consideration. I received a hard psychological blow and was brought to tears several times. I opened the
window, willing to jump out as a sign of protest, but they just sat by unconcerned. They didn’t show the slightest intention to stop me. Only one of my teachers held me back.
From 4 October, many Snow Lotus volunteers, myself included, were the object of several interrogations. We had to bear a lot of pressure and great psychological strain. Moreover, I received threats and this made me lose all sense of safety. Today’s process of confiscation was also a psychological trauma for me. I had to leave Urumuqi, a city which I love and for which I have worked hard to develop work on HIV/AIDS prevention.
Financial Times has a good article, pointing out:
NGOs operate in a difficult regulatory environment in China. Activists say that registration procedures remain onerous and have largely been frozen by officials concerned about the development of “civil society� groups that might some day challenge the Communist party’s monopoly on power.
Aids NGOs have been given greater freedom to operate, after pressure from international organisations and a growing awareness in the government that they can reach out much more effectively to vulnerable groups.
However, Aids groups say that they remain subject to harassment and interference, and mutual suspicions prompted a bitter dispute in April over elections of non-governmental and patients’ representatives to the China board of the Global Fund.
Given the China Daily coverage of the Hepatitis-B case (and there are numerous Chinese language versions across the net, Xinhua, for example), I think there’s more here than simply a troubled relationship between China and NGOs. It is the provincial and municipal government that appears to have taken action against Snow Lotus after being embarassed in the national press. Now, if only Baidu would show me the national press is following up. I am not holding my breath.
Xuelianhua’s official site is www.xuelianhua.org, or www.xjaids.org, but in reality both domain names route you to a Google Groups page. Chang Kun’s blog is on MSN Spaces. Chinese offficial estimates reported 16,035 HIV carriers in Xinjiang as of this June, but this is misleading since that is clearly the official confirmed cases. As Bates Gill and Song Gang reported in the latest China and Eurasia Forum Quarterly (PDF):
The number of confirmed HIV/AIDS cases in Xinjiang reached 16,035 as of June 30, 2006. But according to official estimates, there are some 60,000 HIV-positive persons living in Xinjiang, making it the fourth most-affected province in terms of total cases. On a per-capita basis, Xinjiang is easily the heaviest-hit province by a large margin: Xinjiang accounts for a little more than one percent of China’s population, but about 10 percent of its estimated HIV population.
The Uyghur population is disproportionately affected by the HIV/AIDS crisis in Xinjiang, partly due to lack of medical facilities (mother to child transmission has increased – never a good sign), partly due to a lack of education, and partly due to the related problem of intravenous drug use. Other vectors, unsurprisingly, involve commercial sex workers and migrants. Of course, while governments may not act quickly enough when only a discriminated minority is primarily at risk, HIV does not see ethnicity as an obstacle. NGOs are largely recognized as critical in providing awareness and prevention, and no matter how much money the Clinton Foundation, the Australian government or the Global Fund pours into the region, it won’t be worth a damn if the locals can’t form their own civic groups – many of which die stillborn because of the fear of reprisal. Chang Kun stood up to be counted, and was run out of town.
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